In November 2014, Bjorn Tranquim (age 13) - youngest son of Nalini & Sandro - was diagnosed with Adrenoleukodystrophy (X-ALD) - which is a serious progressive genetic disorder.
Bjorn's older brother, Ramon, had tests to see if he was a sibling match for Bone Marrow Transplant - but he was not found to be . This meant Bjorn qualified for Stem Cell Treatment, only available in the U.S.A.
The family are now relocating to Los Angeles so that Bjorn can commence treatment at UCLA.
I believe God laid on my heart the idea of fundraising for Bjorn - and Nalini was in agreement when I asked if this would be a blessing to their family.
Nalini and Sandro will be unable to work whilst they are living in the US. All donations made will go to the Tranquim family to help them with expenses for the duration of Bjorn's treatment (which will be approximately 6 months).
Nalini commented on her Facebook page in December:
"Please continue to uphold Bjorn and our family in prayer as we face what lies ahead. As the lyrics go in 'Stripes' - 'Standing now with open arms upheld by Your right hand. Lifting my head toward heaven let Your glory shine, let Your healing, divine healing arise'. We hang on to our Lord and Saviour because He alone holds the future in the palm of His hands. Nx"
[Nalini is a worship artist who released her new album "Today Tomorrow" in November 2014 - you can find further details on her website: http://www.nalinitranquim.com
'Stripes' is one of the songs off her album]
Please donate to the family if you feel led to - and please take time to leave a message of encouragement for Bjorn. He will be in isolation for several weeks during the course of his treatment and Nalini is sure that reading messages of support will boost his spirits immensely.
Messages of support can also be emailed to Bjorn at: email@example.com if you don't wish to make a donation.
Please pray for them all as they embark on a huge journey to the other side of the world, and for healing for Bjorn through the treatment. God's will be done!
Fiona Davidson ~ family friend
Do you see what this means—all these pioneers who blazed the way, all these veterans cheering us on? It means we’d better get on with it. Strip down, start running—and never quit! No extra spiritual fat, no parasitic sins. Keep your eyes on Jesus, who both began and finished this race we’re in. Study how he did it. Because he never lost sight of where he was headed—that exhilarating finish in and with God—he could put up with anything along the way: Cross, shame, whatever. And now he’s there, in the place of honor, right alongside God. When you find yourselves flagging in your faith, go over that story again, item by item, that long litany of hostility he plowed through. That will shoot adrenaline into your souls!
Fundraising Page: http://www.gofundme.com/k67kt8